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Register for
the tenth
family forum
Register now Join us in Halifax NS or online on October 3–4 at Canada’s only national education event created specifically for families affected by Duchenne muscular dystrophy.
Read our 2025 community impact report Open Report Reflecting on Year 2 of our 2024-2028 Strategic Plan.
Giving Tuesday - Dec 02 hand signing a cheque book Rare Disease Day Logo

One in every 5,000 boys worldwide is born with Duchenne muscular dystrophy, the most common fatal form of muscular dystrophy.

The disease is relentless. It slowly weakens the body’s muscles, deteriorating function of vital organs and ultimately – shortens their life. Although there are medical treatments that may help slow its progression, there is currently no cure.

Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy. We have provided leadership in research, advocacy, and support since 1995.

With your help, we’ll continue until all Canadians affected by Duchenne can live long and active lives.

Now is the time for you to join the fight to defeat Duchenne.

Meet Deccan

Deccan was diagnosed with Duchenne muscular dystrophy when he was three years old, but that doesn’t stop him from playing his favourite sport – hockey. He is a huge Maple Leaf fan and loves showing his little sister new tricks.

Duchenne muscular dystrophy is an extremely complex disease with a broad range of progressive symptoms. This section is intended to explain the what, why and how behind the most common form of muscular dystrophy diagnosed in children.

In this section, you’ll find important information about how to navigate life with Duchenne and access the right supports for your child now and in the future. Defeat Duchenne Canada is here to help you and your family every step of the way.

Defeat Duchenne Canada relies on the support of individuals and businesses from coast to coast to help make life better for boys and young men living with Duchenne muscular dystrophy, and ultimately, find a cure for this life-limiting disease.