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Our Staff

Lisa McCoy

Lisa McCoy

Chief Executive Officer
Lisa McCoy

Lisa McCoy

Chief Executive Officer

Lisa is a graduate of York University where she studied general arts, with a major in Sociology. She has always had a passion for child development and education so upon completing her degree, she pursued a diploma in early childhood education through Lambton College in Sarnia. Lisa has spent the past 25 years working in the not-for-profit and health charity sector. Throughout her career, she had the opportunity to take on progressively senior positions that enabled her to utilize her collaborative leadership skills to achieve impactful strategic outcomes across a number of key business areas, including fund development, marketing, advocacy and government relations, programs, services and volunteer and community engagement. Some of the national organizations Lisa has had the privilege to support include the YMCA, Heart and Stroke Foundation, Canadian Cancer Society, the MS Society of Canada, where she held the role of Division President and most recently, Tourette Canada, where she served as Executive Director.

Lisa and her husband, Gary, are proud parents to two grown daughters, Rachel and Riley. She and Gary recently relocated from their long-time home in the Greater Toronto Area to their vacation home in Greater Napanee, Ontario. When she’s not at work, Lisa is an avid fan of baseball and the performing arts. She also enjoys hiking, skiing, paddle boarding, swimming, and relaxing with a good book as often as possible. Lisa treasurers the opportunity to volunteer her time to worthwhile organizations. She is currently a member of the Development Committee for Jörgen Dance (formerly Canada’s Ballet Jörgen) and recently served as Vice President of the Board for Community Care Durham.

Rick Moss

Rick Moss

National Director, Strategic Partnerships
Rick Moss

Rick Moss

National Director, Strategic Partnerships

Rick began in radio where he had the privilege of meeting John Davidson. After a lengthy career where he worked his way up to senior management, Rick was approached by John to take on a new challenge as Managing Director of Defeat Duchenne Canada. Rick feels it has been a privilege and honour to be part of this team for the past 13 years.

Alison Davidson

Alison Davidson

National Coordinator, Database
Alison Davidson

Alison Davidson

National Coordinator, Database

Fortunate to have experienced the wonderful world of philanthropy in both healthcare and education, Alison is excited to be joining the team at Defeat Duchenne Canada. She is intrigued by the science and art of building support for a wonderful cause in the community and dedicated to data integrity in that pursuit. Wife, mother, daughter, sister and friend, she enjoys camping in summer, curling in the winter and yoga all year.

Picture of Alison Boyce

Alison Boyce

National Manager, Philanthropy
Alison Boyce

Alison Boyce

National Manager, Philanthropy

Alison joined Defeat Duchenne Canada in March 2021. She comes to the organization with experience working on national fundraising campaigns and peer-to-peer events at the MS Society of Canada, ALS Canada, and Camp Quality Canada. Alison is thrilled to be bringing her extensive knowledge of fundraising strategy to join the small but mighty team at Defeat Duchenne Canada as their Manager of Philanthropy.

Picture of Kate Miller

Kate Foster

National Coordinator, Administration & Donor Relations
Kate Foster

Kate Foster

National Coordinator, Administration & Donor Relations

Before joining the Defeat Duchenne Canada team, Kate has had multiple years of experience working as an administrator for clinical rehabilitation centres and charity organizations. She is thrilled to be continuing her professional and personal journey in the non-profit sector. She is excited to share her knowledge, experience and client-focused approach with all of our families, supporters and team here at Defeat Duchenne Canada.

Bobbi Vasher Headshot

Bobbi Vasher

National Manager, Marketing and Communications
Bobbi Vasher

Bobbi Vasher

National Manager, Marketing and Communications

Bobbi comes to Defeat Duchenne Canada with over a decade of experience working within the non-profit sector in various capacities, including social work, education, and communications. Motivated by a deep-seated commitment to making positive change in the community, she embraces her role as National Manager of Marketing & Communications with great enthusiasm and spirit. Bobbi currently lives in Quebec City, and spends her free time studying languages and perusing local bookstores.

Our Board Members

Brian Atkinson

Brian Atkinson

Chair of the Board
Chair of Business and Management Studies, Centennial College
Oshawa,
ON
Brian Atkinson

Brian Atkinson

Chair of the Board

Chair of Business and Management Studies, Centennial College

Brian is a senior human capital leader with over 25 years of international and domestic progressive experience with a demonstrated ability to lead human resources functions as a business; by setting people strategies that are aligned to business goals.

A self-described lifelong learner, Brian holds an MBA from the Ivey Business School at Western University, the Certified Training and Development Professional and Certified Human Resources Leader designations.

Jeffrey Preston

Dr. Jeffrey Preston

Past Chair of the Board
Assistant Professor of Disability Studies, King’s University College, Western University
London,
ON
Dr. Jeffrey Preston

Dr. Jeffrey Preston

Past Chair of the Board

Assistant Professor of Disability Studies, King's University College, Western University

Jeff Preston, Ph.D., is an assistant professor of Disability Studies at King’s University College at Western University, where he teaches classes on disability, popular culture and policy. A long-time advocate and motivational speaker, in 2008, Jeff drove his electric wheelchair 650km from London to Ottawa to raise awareness about the lack of accessible transit in the province. Jeff is currently vice chair of the Committee of Adjustment at City Hall and vice chair of the leadership table for London 4 All, a working group organized by the United Way of Elgin & Middlesex to complete recommendations generated by City Hall’s poverty panel.

Lisa Hoffman

Dr. Lisa Hoffman

Director & Chair, Research Funding Advisory Committee
Associate Scientist, Lawson Health Research Insiture
London,
ON
Dr. Lisa Hoffman

Dr. Lisa Hoffman

Director & Chair, Research Funding Advisory Committee

Associate Scientist, Lawson Health Research Insiture

Dr. Lisa Hoffman is chair of the Jesse’s Journey Research Funding Advisory Committee, leading a team of researchers, Duchenne parents, and external reviewers through the rigorous annual granting process.

Dr. Hoffman obtained her Ph.D. from the University of Saskatchewan in 2000. She was appointed as a Lawson Imaging Scientist in the Fall of 2009, and as Assistant Professor in the Departments of Medical Biophysics, Western University (Fall 2009) and Anatomy & Cell Biology, Western University (Spring 2010). Capitalizing on the breadth of her multidisciplinary experience, Dr. Hoffman’s current research interests lie in Molecular Imaging and Cell Therapeutics for the treatment of both the skeletal and cardiac manifestations of Duchenne muscular dystrophy (DMD).

Richard Beatty

Director & Treasurer
Partner, MNP LLP
Kitchener,
ON
Richard Beatty

Richard Beatty

Director & Treasurer

Partner, MNP LLP

As a partner of MNP in Kitchener, Ontario, Richard works in the Assurance and Accounting group with private enterprises. He’s also the regional leader of the Indigenous Services niche, focusing on First Nations & Indigenous organizations, communities, not-for-profit entities and business enterprises. Richard is a graduate of the University of Lethbridge with a Bachelor’s in Management. Richard and his wife Amy have lived in Ontario for ten years. They have two children (Ben & Lexie). Ben was diagnosed four years ago with Duchenne Muscular dystrophy. Richard joined the Board of Defeat Duchenne Canada in January 2022 and serves as our Treasurer.

Niki Kemeny

Niki Kemeny

Secretary
AI-Media
Toronto,
ON
Niki Kemeny

Niki Kemeny

Secretary

AI-Media

Niki is a theatre production and training professional with an interest in media accessibility. Prior to her recent work in closed captioning, Niki toured with Cirque du Soleil in production management, organizing performers, crews, and gear in a variety of places around the world. Before that, Niki worked on various other theatre and television productions. As well, Niki has an MA (Western), B Ed (UBC), and BA Hons (Carleton) in English, which she made good use of while teaching English at Fanshawe College and other institutions, and continues to make use of, besting crosswords. After many years on the road, she’s happy to be largely working from home, where she can spend time with her partner, Tyler, and their cat, Kingsley.

Picture of Tom Cappelli

Tom Cappelli

Director
Retired McDonald’s Franchisee
Magog,
QC
Tom Cappelli

Tom Cappelli

Director

Retired McDonald’s Franchisee

Tom has a close connection to Duchenne muscular dystrophy as his 24-year-old son Aidan was diagnosed at an early age.

Tom retired as a successful McDonald’s restauranteur in 2017 after more than four decades in business with 13 McDonald’s locations across Quebec. During his business career, Tom and his wife Karen were generous community advocates and fundraisers for various charities. In 2004, after Aidan’s diagnosis, Tom was introduced to Jesse’s Journey, now Defeat Duchenne Canada, and was moved to support the vision of a future without Duchenne. Tom began his term on the Board of Directors in June 2022.

Dale Cheeseman

Dale Cheeseman

Director
Managing Director, Scotiabank Global Banking & Markets
Oakville,
ON
Dale Cheeseman

Dale Cheeseman

Director

Managing Director, Scotiabank Global Banking & Markets

Dale has spent the past 17 years in the financial services industry, predominately in the area of equity derivatives. Prior to this Dale was an Armour Officer in the Canadian Armed Forces during which time he served on two NATO missions; Bosnia & Herzegovina in 1997 and Kosovo in 1999. Dale holds a Bachelor’s degree in Chemical and Materials Engineering from the Royal Military College of Canada and an MBA from Queen’s University. Outside the demands of work, Dale enjoys maximizing time with his wife and three children.

Frank Desrosiers

Frank Desrosiers

Director
Co-Owner, Windmill Plastics Ltd.
Magog,
QC
Frank Desrosiers

Frank Desrosiers

Director

Co-Owner, Windmill Plastics Ltd.

Frank has served on the Board of Directors of Defeat Duchenne Canada / Jesse’s Journey since 2013.  In addition to his role on the Board, he is a member of the Research Funding Advisory Committee and of the Major and Planned Gifts Campaign Committee.  Frank is currently the co-owner of Windmill Plastics Ltd., a privately held injection molding company where he heads up business development and leads a team of over 100 employees.  Prior to being an entrepreneur, Frank worked for specialty pharmaceutical company Paladin Labs, where he held a number of leadership positions, including:  Director of Consumer Healthcare, Vice President International Operations and Vice President Commercial Canada.  Frank has also worked for global strategy consulting firm Oliver Wyman, where he led client and consultant teams in North America, Europe, Africa and the Middle East.  His mandates focused on commercial and market entry strategy, cost reduction and strategic planning.  Frank’s diverse business experience also includes time as a Manager within the McDonald’s franchisee network and also as a market researcher for global market research firm Ipsos.  Frank holds a Bachelor’s in Business Administration from Bishop’s University and a Masters in Business Administration from Simon Fraser University.

Rev. Kevin George

Rev. Kevin George

Director
Rector, St Aidan’s Church, London
London,
ON
Rev. Kevin George

Rev. Kevin George

Director

Rector, St Aidan’s Church, London

Ordained in 1997 in the diocese of Eastern Newfoundland and Labrador, Kevin has been a priest in the diocese of Huron since 1998. Kevin has served in the Parish of Labrador West, NL; St Marks by-the-Lake Tecumseh, ON; and is currently the Rector of St Aidan’s Church London, ON. Kevin earned a Bachelor in Education degree from Memorial University of Newfoundland, a Master of Divinity Degree from Huron University, and a Doctorate in Ministry from McCormick Theological Seminary. His thesis research was focused on faithful baptismal response in interfaith settings. Kevin is married to Catherinanne, who is the Director of Campus Ministry at Brescia University, and a chaplain in the Royal Canadian Naval Reserve. Kevin is a loyal Habs fan, prays for the return of Les Expos, and has learned what suffering looks like from being introduced to the Detroit Lions by Rob! Kevin is an avid reader, loves being involved in the community, and enjoys an appropriate adult beverage with friends. Fun fact: In 2019 Kevin preached for 55 Hours without sleep.

Ted Lindsay

Ted Lindsay

Director
Marketing Specialist, Village Media/Burlington Today
Burlington,
ON
Ted Lindsay

Ted Lindsay

Director

Marketing Specialist, Village Media/Burlington Today

Ted has been proudly associated with Defeat Duchenne Canada / Jesse’s Journey since 2003 through a charitable event in the Burlington area called Eric’s Amazing Race. This family-run event has generated approximately $215,000 for Duchenne muscular dystrophy research over the past thirteen years. He and his wife Heather are committed to working to ‘Defeat Duchenne’ on behalf of their nephew Eric and the many other boys they have had the privilege of meeting through the years.

Ted is proud to be a Defeat Duchenne Canada board member since January 2015 and looks forward to advancing our mission to eradicate this disease. In addition to his involvement with Defeat Duchenne Canada, Ted has spent the past twenty-six years with Metroland Media in the advertising field, specializing in print and digital marketing solutions. He is a proud father of three boys and, in his spare time, is an avid hockey fan and loves music. Ted thanks John and Jesse Davidson for their inspiration.

Hanns Lochmüller

Dr. Hanns Lochmüller

Director
Senior Scientist, Children’s Hospital of Eastern Ontario Research Institute
Ottawa,
ON
Dr. Hanns Lochmüller

Dr. Hanns Lochmüller

Director

Senior Scientist, Children's Hospital of Eastern Ontario Research Institute

Hanns is a neurologist and clinical academic specializing in genetic neuromuscular disorders and rare diseases. He is a Senior Scientist at the Children’s Hospital of Eastern Ontario (CHEO) Research Institute. He also holds appointments as Professor of Neurology in the University of Ottawa Faculty of Medicine and the Department of Medicine, Division of Neurology at The Ottawa Hospital. Hanns’s clinical activities focus on clinical research and care of patients with rare neuromuscular disorders, including myotonic dystrophy (DM1), spinal muscular atrophy (SMA), muscular dystrophy and congenital myasthenic syndromes (CMS). He has a strong commitment to working with patients and patient organizations in Canada, as he has with organizations in Europe for many years.

Natalie Rumscheidt

Natalie Rumscheidt

Director
Marketing & Nutrition Director, Egg Farmers of Canada
Ottawa,
ON
Natalie Rumscheidt

Natalie Rumscheidt

Director

Marketing & Nutrition Director, Egg Farmers of Canada

Natalie has a diverse background in strategic marketing and communications with over 25 years of management experience in consumer marketing, business development, sport, and performing arts sectors. As Marketing & Nutrition Director with Egg Farmers of Canada (EFC) since 2022, Natalie leads EFC’s national marketing strategy targeting consumers, healthcare professionals and food service and works with provincial stakeholders to promote the benefits of quality eggs produced in Canada.  She previously held roles with the Coaching Association of Canada and the National Arts Centre Orchestra, as well as with organizing committees of the Canada Games, the Commonwealth Games, the Olympic and Paralympic Games, and the Blue Nose International Marathon. A native of Ottawa, Natalie holds a Bachelor of Arts from St. Francis Xavier University. A passionate sports fan and lover of the arts, she also remains active as a volunteer, athlete, and coach in her community.

Doyle Steinke

Doyle Steinke

Director
GM, KeyAg Kubota
Red Deer,
AB
Doyle Steinke

Doyle Steinke

Director

GM, KeyAg Kubota

Doyle Steinke and his wife, Jody, have had the privilege of raising two beautiful boys along with their two sisters. Duchenne muscular dystrophy has been part of their son’s journey and has changed the way they all view life.

They live on a small tranquil farm in central Alberta that is home to horses, cattle, rabbits, dogs, cats and us. Over several decades, Doyle has had the experience of a career in AgriBusiness that has kept life very busy – especially going back to school twice – first for an Agricultural Business Diploma and then an MBA. The Steinke family counts every day a blessing and try to live life to the fullest.

Ken Wilson

Director
Director of Marketing, BGE Indoor Air Quality Solutions
Calgary,
AB
Ken Wilson

Ken Wilson

Director

Director of Marketing, BGE Indoor Air Quality Solutions

Ken has a very close connection to Duchenne muscular dystrophy; his oldest son, Eli, has DMD. Ken was attracted to Defeat Duchenne Canada given the organization’s singular focus on research to find a cure, and he wants to dedicate his volunteer time to such a worthy and personal cause. He has also volunteered as a director for Muscular Dystrophy Canada (MDC), heading up their marketing committee, and as a director at large for the Cochrane Humane Society.

Ken holds a BA from Brandon University and an MBA from the Warwick School of Business in Warwickshire, England.

Bonnie Wooten

Bonnie Wooten

Director
Children’s Hospital – London Health Sciences Centre
London,
ON
Bonnie Wooten

Bonnie Wooten

Director

Children's Hospital - London Health Sciences Centre

Bonnie Wooten is a registered nurse, project consultant and shared decision-making implementation consultant/decision coach at Children’s Hospital – London Health Sciences Centre (LHSC). During her career, she has worked in various professional leadership capacities in both acute care and community settings, focusing on women’s and family health. Bonnie obtained her undergraduate degree from Western University and her graduate degree from Queens University.

Because of her background, she brings an understanding of policy development, consultation, and leadership needed to support internal and regional projects. As a Shared Decision-Making coach, she works with pediatricians and other health care professionals internally and provincially, facilitating processes and strategies to address the pros and cons, risks and benefits of family and patient choice. She brings knowledge of the health care system and its complexities, along with what is needed to impact outcomes positively.

Throughout her career, she has developed strong interpersonal and business relationships that maintain effective working relationships. She is client and customer-focused and very much aligned with the goals and focus of Defeat Duchenne Canada. She has solid organizational leadership and decision-making skills that will immediately contribute to the organization.

Our Committee Members

Brian Atkinson (Board Chair)

Dale Cheeseman (Board Director)

Richard Beatty (Board Director and Treasurer)

Steve Deunch (Chair – Volunteer)

Dale Cheeseman (Board Director)

Sherene Davidson (Volunteer)

Matthew Hunter (Volunteer)

Jim Knowles (Volunteer)

Mike Sheffar (Volunteer)

Mike Morden (Volunteer)

Lorrie Power (NS) –  Duchenne Family Advisory Committee Chair and Mother

Kerri Denysiuk (SK) – Mother

Nicole Mathison (SK) – Mother

Kasha Mitton (BC) – Mother

Darlene Morden (ON) – Mother

Eric Morden (ON) – Young Adult with Duchenne

Rachael Witzke (ON) – Mother

Nicola Worsfold (ON) –  Mother

Ken Wilson (Board Director & Chair of the Marketing Advisory Committee)

Rochelle ten Haaf (Staff – National Director, Marketing and Stakeholder Engagement)

Bob Mackalski (Volunteer)

Natalie Rumscheidt (Volunteer)

Cheryl Weedmark (Volunteer)

Nicola Worsfold (Staff –  National Vice-President, Research, Education & Advocacy)

Lisa Hoffman (RFAC Chair and Associate Scientist at the Lawson Health Research Institute, London, Ontario)

Jeff Chamberlain (Professor in the Departments of Neurology, Medicine and Biochemistry at the University of Washington School of Medicine, Seattle, Washington, USA)

Hernan Gonorazky (Pediatric Neuromuscular Specialist and Scientist at the Hospital of Sick Children, Toronto, Ontario)

Hanns Lochmüller (Neuromuscular Specialist and Senior Scientist at the University of Ottawa, Ottawa, Ontario)

Jean Mah (Pediatric Neuromuscular Specialist and Senior Scientist at Alberta Children’s Hospital, Calgary, Alberta)

Toshifumi Yokota (Professor in the Department of Medical Genetics at the University of Alberta, Edmonton, Alberta)

Kevin George (Board Director)

Alison Boyce (Staff – National Manager of Philanthropy)

Mallory Teal (Volunteer)

Want to learn more about our volunteer leadership positions?

Click the button below to submit a volunteer application form.