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Defeat Duchenne Canada: CEO Recruitment

June 20, 2023
Defeat Duchenne Canada is looking for a Chief Executive Officer (CEO) to help lead the organization, and the Canadian Duchenne muscular dystrophy community, toward a future without this rare, life-shortening disease.

This is an opportunity to bring strategic vision, progressive practices, and continued operational excellence to a dynamic organization with an impressive past and a bright future.

Reporting to an engaged Board of Directors and working closely with a high-performing team, the CEO will ensure success in all areas of the business, including community engagement, fundraising, research and advocacy. The CEO is responsible and accountable for the organization’s overall performance through the creation and implementation of the strategic plan, achievement of its goals, and effectively raising funds to ensure long-term financial viability.

The CEO will build positive relationships across a broad stakeholder group, including families, donors, corporate partners, researchers, clinicians, and government, as well as international thought-leaders and like organizations. The CEO will inform, consult with and actively listen to multiple constituencies with diverse perspectives while being committed to arriving at solutions that align with Defeat Duchenne Canada’s vision: a future without Duchenne.

As the ideal candidate, you are an experienced leader in the not-for-profit sector, ideally in a healthcare non-profit or public health environment. You have demonstrated experience and success soliciting transformative gifts and delivering transformational levels of income growth by fostering a culture of philanthropy, including the ability to design and lead processes, programs and people in raising transformational funds. You have experience working with or reporting to a Board of Directors; financial acumen, including experience managing budgets; and proven ability to operationalize strategic objectives into successful annual business plans.

You have experience leading, coaching and developing successful teams and model the organizational values of determination, focus, inclusivity, collaboration, and trust. A demonstrated commitment to advancing equity, diversity, inclusion and accessibility is required. You are an accomplished networker, trusted relationship builder and highly effective communicator with an ability to quickly establish rapport and garner respect through a supportive and collaborative consensus-building style. Like Defeat Duchenne Canada’s community of families, advocates, donors, researchers and care practitioners, you will be dedicated to a future without Duchenne.

Defeat Duchenne Canada is headquartered in London, Ontario, with staff working coast-to-coast; this position can be located anywhere in Canada. A post-secondary degree in a related field is an asset, as is familiarity with diverse business functions such as advocacy, adult education, marketing, and public relations. Proficiency in English is required, and bilingualism in French is an asset.

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