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Canadians Talk Duchenne – August

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Canadians Talk Duchenne – August

Canadians Talk Duchenne – August

Starts août 31, 2022
7:00 PM
Event Type: Virtual
Event Category: Education & Support
Audience Type: Parent or Caregivers

Vivre avec la dystrophie musculaire de Duchenne inspire souvent un sentiment d’isolement. C’est pourquoi l’organisme Vaincre Duchenne Canada s’est associé à Duchenne Canadian Connection pour créer un sentiment de solidarité en réunissant des familles de partout au pays afin d’apprendre les uns des autres et de discuter d’événements actuels pertinents pour notre communauté. Alors, servez-vous votre boisson préférée et joignez-vous à notre rencontre virtuelle mensuelle pour les parents et les proches aidants!

There is no formal agenda, just an opportunity to share stories and exchange ideas with others who understand what you’re going through. We are proud that our National Vice President of Research, Advocacy, and Education, Nicola Worsfold, is an expert in the field of Duchenne and the proud parent of Owen, her son living with the disease. Her Co-Host, Amy Cavalier from Duchenne Canadian Connection, is also a proud parent of Kaleb and Liam; both of her boys also have Duchenne. During these talks, they will share their personal and professional perspectives, both deeply meaningful and informational.

Each social will be live via Zoom at 7:00 PM ET. Canadians Talk Duchenne is a free event and is open on a first-come, first-served basis to the first 25 registrants. Once registered, you will receive an email with the Zoom details.

Register