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What’s Next in Duchenne Advocacy: Building Momentum, Driving Change

What’s Next in Duchenne Advocacy: Building Momentum, Driving Change

Début octobre 22, 2026
6:00 PM
Type d'événement : virtuel
Event Category: Advocacy
Public visé : tous

What’s Next in Duchenne Advocacy: Building Momentum, Driving Change

Thursday, October 22 | 6:00 – 7:00 p.m. ET | Zoom

Register below, and we’ll email your Zoom link. If it doesn’t arrive, please check your junk or spam folder.

Join Defeat Duchenne Canada and EMPOWER Advocacy for an evening built around one question: what’s next when it comes to timely, equitable access to Duchenne treatments in Canada? You’ll hear where things stand, pick up practical tips you can use right away, and hear from other individuals and families about their advocacy experiences.

Come to the session ready to:

  • Learn about the current status of Duchenne treatments in Canada and where your voice can make a difference.
  • Review key tips from Defeat Duchenne Canada’s advocacy training webinar series.
  • Partagez your own experience: how you got started, what worked, or any challenges you encountered.
  • Discuss practical next steps: who to contact, your advocacy “ask”.
  • Look ahead to upcoming ways to get involved, including opportunities to share your or your family’s lived experience with decision-makers.

This session is for anyone in the Canadian Duchenne community, including parents, caregivers, adults living with Duchenne, siblings, and extended family. No advocacy experience needed. If you’ve never done this before and aren’t sure where to begin, this session was built with you in mind.

Your Voices. Your Families. Your Advocacy.

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