{"id":1446,"date":"2021-12-30T14:09:50","date_gmt":"2021-12-30T14:09:50","guid":{"rendered":"http:\/\/defeatduchenne.ca\/?page_id=1446"},"modified":"2026-09-22T12:30:28","modified_gmt":"2026-09-22T16:30:28","slug":"our-team","status":"publish","type":"page","link":"https:\/\/defeatduchenne.ca\/fr\/contact-us\/our-team\/","title":{"rendered":"Notre \u00e9quipe"},"content":{"rendered":"\t\t
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Our Staff<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Nicola Worsfold<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tExecutive Director\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tNicola Worsfold\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Nicola Worsfold<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Executive Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Nicola is the proud mother of two children; her eldest son, Owen, has Duchenne muscular dystrophy. Shortly after her son\u2019s diagnosis in 2013, she started a patient organization, Stand for Duchenne Canada, dedicated to advocating for access to medicines in Canada. A few years ago, Nicola made the difficult decision to leave a 15-year pharmaceutical career in medical affairs to focus on supporting the Canadian Duchenne community. In 2019, Nicola joined forces with Jesse\u2019s Journey, Canada\u2019s leading Duchenne organization, to continue her work on driving a research and advocacy strategy in Canada.<\/p>\n

She continues to promote partnership and collaboration within medical, pharma, government, and patient organizations to improve access to the best care and medicines for families living with Duchenne. Nicola works closely with national and international groups as an investigator for the Neuromuscular Disease Network for Canada (NMD4C), a member of the International Duchenne Community Advisory Board (CAB), and as a contributor to the Canadian Neuromuscular Disease Registry (CNDR).<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Rick Moss<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Rick Moss<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Interim National Director, Philanthropy<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Rick began in radio where he had the privilege of meeting John Davidson. After a lengthy career where he worked his way up to senior management, Rick was approached by John to take on a new challenge as Managing Director of Defeat Duchenne Canada. Rick feels it has been a privilege and honour to be part of this team for the past 13 years.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Jennifer DiRaimo<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Jennifer DiRaimo<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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National Director, Research & Education<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Jennifer DiRaimo is the Director of Research and Education at Defeat Duchenne Canada. She is a master\u2019s-trained genetic counsellor, board-certified through the Canadian Association of Genetic Counsellors (CAGC).<\/p>\n

Jennifer is deeply dedicated to improving the lives of individuals and families affected by rare diseases. She brings over six years of experience in the non-profit sector, with expertise spanning research, education, leadership, patient support, and advocacy. In addition, she has more than 15 years of clinical experience as a genetic counsellor, having worked collaboratively within diverse healthcare teams.<\/p>\n

Her work is grounded in a strong commitment to serving patients and their families and in research with a focus on translating scientific advances into meaningful, real-world impact.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Rosalind O\u2019Connell<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Rosalind O\u2019Connell<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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National Director, Advocacy<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Rosalind O\u2019Connell is a healthcare advocacy and communications leader with more than two decades of experience spanning strategic advocacy, public affairs, communications and stakeholder engagement.<\/p>\n

She specializes in building and leading integrated advocacy, communications and government relations campaigns, with a particular focus on improving timely and equitable access to treatments and care for a variety of disease communities. She has a proven track record in helping patient organizations, patients and caregivers translate lived experience into coordinated advocacy efforts that have directly influenced policy decisions.<\/p>\n

During her career, Rosalind has also served as the national communications and public affairs lead for a physician association and directed advocacy and public relations programs for clients at several public relations agencies and a leading global provider of commercialization services to the life sciences industry.<\/p>\n

Rosalind holds a Bachelor\u2019s degree in English and Humanities from York University and is a graduate of the Corporate Communications program at Seneca College.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Rochelle ten Haaf<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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National Director, Organization Marketing & Communications (Part Time)<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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With over 17 years of experience in the non-profit sector across Canada and the UK, Rochelle ten Haaf is a passionate and strategic marketing and communications professional. She has helped numerous charitable organizations turn awareness into action through compelling storytelling and mission-driven engagement. Rochelle is proud to bring that same dedication and energy to the fight to defeat Duchenne muscular dystrophy.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Bobbi Vasher<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Bobbi Vasher<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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National Director, Program Marketing & Communications <\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Bobbi brings over 15 years of experience in the non\u2011profit sector, with a diverse background spanning social work, education, fundraising, and communications.<\/p>\n

Guided by a deep commitment to creating positive change, she offers a unique blend of compassion, strategic insight, and creative vision to every project she takes on. Known for her collaborative spirit and genuine care for the communities she serves, Bobbi approaches her work with enthusiasm and heart.<\/p>\n

At Defeat Duchenne Canada, she co-leads marketing and communications initiatives that are compassionately and strategically developed to bring us closer to a day when everyone living with Duchenne has access to the treatments and care they deserve.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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William Marchand<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tWilliam Marchand\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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William Marchand<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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National Coordinator, Education, Engagement, & Support<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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With a decade of experience in the non-profit and public sectors, William brings a deep commitment to health equity, community engagement, and compassionate support. He holds a diploma in gerontology and a honours degree in therapeutic recreation. He has worked across various health sectors, including dementia care, HIV services, substance use support, and complex medical conditions.<\/span><\/p>\n

For the past six years, William has focused on education, engagement, and support, helping individuals, families, and communities navigate healthcare systems with dignity and inclusion. His work is grounded in lived experiences and best practices, ensuring programs are both person-centred and impactful.<\/span><\/p>\n

William is excited to bring his knowledge and passion to Defeat Duchenne Canada, supporting a mission that drives meaningful change across the country. He is proud to be part of a team that is making a lasting difference in the lives of those affected by Duchenne muscular dystrophy.<\/span><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Rafaela Fernandes<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Rafaela Fernandes<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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National Administrator<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Originally from Brazil, Rafaela is a young professional who is passionate about helping others and fighting for the causes she believes in. She has spent the past few years finishing her Business Degree at Lambton College and working with their research department. Outside of work, you can often find Rafaela spending time with her loved ones, reading, and playing tennis.<\/div>\n<\/div>\n<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Our Board Members<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Brian Atkinson<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tChair of the Board\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tAssociate Dean, Industry Training, Centennial College\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tBrian Atkinson\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Brian Atkinson<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Chair of the Board<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Associate Dean, Industry Training, Centennial College<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Brian is a senior academic and human capital leader with over 30 years of international and domestic progressive experience with a demonstrated ability to lead academic and human resources functions as a business; by setting academic and people strategies that are aligned to business goals.<\/p>\n

A self-described lifelong learner, Brian holds an MBA from the Ivey Business School at Western University, the Institute of Corporate Directors (ICD.D), Certified Training and Development Professional and Certified Human Resources Leader designations. Brian is the past Board Chair of the Institute for Performance and Learning,\u00a0 a national not-for-profit member driven organization for professionals supporting learning and performance in the workplace.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Dr. Jeffrey Preston<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tAssistant Professor of Disability Studies, King’s University College, Western University\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tDr. Jeffrey Preston\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Dr. Jeffrey Preston<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Past Chair of the Board<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Assistant Professor of Disability Studies, King's University College, Western University<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Jeff Preston, Ph.D., is an assistant professor of Disability Studies at King\u2019s University College at Western University, where he teaches classes on disability, popular culture and policy. A long-time advocate and motivational speaker, in 2008, Jeff drove his electric wheelchair 650km from London to Ottawa to raise awareness about the lack of accessible transit in the province. Jeff is currently vice chair of the Committee of Adjustment at City Hall and vice chair of the leadership table for London 4 All, a working group organized by the United Way of Elgin & Middlesex to complete recommendations generated by City Hall\u2019s poverty panel.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Niki Kemeny<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tNiki Kemeny\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Niki Kemeny<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Secretary<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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AI-Media<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Niki works in event production and training.\u00a0 After several years in television and theatre, Niki spent more than a decade touring with Cirque du Soleil in production management, organizing performers, crews, and gear all over the world. She has also worked recently in media accessibility, training closed captioners.\u00a0\u00a0Niki has an MA (Western), B Ed (UBC), and BA Hons in English, which she made good use of while teaching English at Fanshawe College and at other institutions, and continues to make use of, attempting to best crosswords. After many years on the road, she\u2019s happy to be largely working from home, where she can spend time with her partner, Tyler, and their cats, Kingsley and Martin.<\/div>\n<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>
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Richard Beatty<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tRichard Beatty\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Richard Beatty<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Treasurer<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Partner, MNP LLP<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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As a partner of MNP in Kitchener, Ontario, Richard works in the Assurance and Accounting group with private enterprises. He\u2019s also the regional leader of the Indigenous Services niche, focusing on First Nations & Indigenous organizations, communities, not-for-profit entities and business enterprises. Richard is a graduate of the University of Lethbridge with a Bachelor’s in Management. Richard and his wife Amy have lived in Ontario for ten years. They have two children (Ben & Lexie). Ben was diagnosed four years ago with Duchenne Muscular dystrophy. Richard joined the Board of Defeat Duchenne Canada in January 2022 and serves as our Treasurer.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Tom Cappelli<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tTom Cappelli\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Tom Cappelli<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Retired McDonald\u2019s Franchisee<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Tom has a close connection to Duchenne muscular dystrophy as his 28-year-old son Aidan was diagnosed at an early age.<\/p>\n

Tom retired as a successful McDonald\u2019s restauranteur in 2017 after more than four decades in business with 13 McDonald\u2019s locations across Quebec. During his business career, Tom and his wife Karen were generous community advocates and fundraisers for various charities. In 2004, after Aidan\u2019s diagnosis, Tom was introduced to Jesse\u2019s Journey, now Defeat Duchenne Canada, and was moved to support the vision of a future without Duchenne. Tom began his term on the Board of Directors in June 2022.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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John Davidson<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tFounder, Jesse’s Journey\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tJohn Davidson\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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John Davidson<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Founder, Jesse's Journey<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Inspired by his son Jesse, who was diagnosed with Duchenne muscular dystrophy at the age of 6, John Davidson founded Jesse\u2019s Journey in 1994 (now known as Defeat Duchenne Canada). After two marathon walks\u2014across Ontario with Jesse in 1995 and across Canada solo in 1998\u2014John has remained an active part of the ongoing mission to end Duchenne. John was just two years old when he came to Canada from Scotland. He enjoyed a 30-year career in broadcasting \u2013 first on radio in London, then with CBC Radio and Television in Vancouver.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Perry Esler<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tInterim CEO, Georgian Bay General Hospital Foundation\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tPerry Esler\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Perry Esler<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Interim CEO, Georgian Bay General Hospital Foundation<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Perry has spent 28 years in senior leadership roles across the charitable sector, supporting healthcare, children’s causes, hospital foundations, and disease-focused organizations throughout Canada and the United States. Inspired by the impact of Jesse’s Journey and the vision of John and Jesse Davidson, he has dedicated his career to advancing philanthropy and has helped raise hundreds of millions of dollars for important causes. A former member of the Defeat Duchenne Canada leadership team, Perry is proud to return as a Board member and continue supporting the organization’s mission to fund research and help defeat Duchenne.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Ella Korets-Smith<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tManaging Director, EKS Ventures\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tElla Korets-Smith\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Ella Korets-Smith<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Managing Director, EKS Ventures<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Ella Korets-Smith, MSc, MBA, is a biotechnology executive, company builder, entrepreneur, and board director with more than 20 years of experience advancing health innovation. She has led strategy, business development, licensing, fundraising, and commercialization across therapeutics, vaccines, gene therapy, regenerative medicine, and medical devices. Ella has helped raise private and non-dilutive capital, build companies and partnerships, and guide organizations through growth and strategic change. Ella joined the DDC board because she is passionate about translating innovation into patient impact, strengthening Canada\u2019s life sciences ecosystem, and supporting mission-driven organizations through governance, fundraising, and investment stewardship.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Dr. Laura McAdam<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tPhysician Director of Ambulatory Care, Holland Bloorview Kids Rehabilitation Hospital\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tDr. Laura McAdam\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Dr. Laura McAdam<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Physician Director of Ambulatory Care, Holland Bloorview Kids Rehabilitation Hospital<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Dr. Laura McAdam is a clinician-scientist and Physician Director of Ambulatory Care at Holland Bloorview Kids Rehabilitation Hospital.\u00a0 Throughout her career, she has been dedicated to improving health, quality of life, transition and psychosocial well-being of individuals living with Duchenne through clinical care, research, and family-centred advocacy.\u00a0 Her work spans clinical trials, standards of care, patient-reported outcomes and initiatives that address the social challenges faced by individuals with DMD.\u00a0 Dr. McAdam was inspired to join the Board because of her passion for supporting the Duchenne community and her commitment to advocating for equitable access to emerging therapies and high-quality care.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Eric Morden<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Eric Morden<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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BSc Biology; Minor in Disability Studies<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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I am a recent graduate of Carleton University where I received a Bachelor of Science Degree in Biology with a minor in Disability Studies. I also have Duchenne muscular dystrophy, and I have been a part of the Defeat Duchenne Canada family since I was 4 years old. I was inspired to join the board because I think that my lived experience as a person with DMD would be invaluable, and I am very passionate in helping improve the lives of others with DMD. Apart from my role on the board, I am also a member of the Duchenne Family Advisory Committee and the Advocacy Committee.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Natalie Rumscheidt<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tMarketing & Nutrition Director, Egg Farmers of Canada\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tNatalie Rumscheidt\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Natalie Rumscheidt<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Marketing & Nutrition Director, Egg Farmers of Canada<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Natalie has a diverse background in strategic marketing and communications with over 30 years of management experience in consumer marketing, business development, sport, and performing arts sectors. Natalie leads the consumer marketing strategy for the Egg Farmers of Canada (EFC) as their Marketing & Nutrition Director and has previously held roles with the Coaching Association of Canada and the National Arts Centre Orchestra.\u00a0 A native of Ottawa, Natalie is a passionate sports fan, lover of the arts, and remains active as a volunteer, athlete, and coach in her community.<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>
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Kadey BJ Schultz<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tFounder and Managing Partner, Schultz Law Group LLP\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tKadey BJ Schultz\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Kadey BJ Schultz<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Founder and Managing Partner, Schultz Law Group LLP<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Kadey is the Founder and Managing Partner of Schultz Law Group LLP, an industry leading anti-fraud, white collar crime, insurance law firm based out of Toronto.<\/p>\n

Schultz Law Group LLP acts as advisors to insurers and self-insured entities, anticipating and managing risk, investigating and prosecuting against insurance fraud, and defending all variety of insurance claims.<\/p>\n

Kadey has been honoured with peer and industry acknowledgements, including the Lexpert Zenith Mid-Career Excellence Award, the Lexpert Rising Stars Leading Lawyers under 40 Award, the Lexpert US\/Canada Litigators to Watch, as well as the Canadian Defence Lawyers\u2019 Exceptional Young Lawyer Award. In 2024, she was an awardee for both the Ontario Volunteer Service Award, and the Women in Insurance Award.\u00a0 Kadey has been ranked as a Best Lawyer in Canada for Insurance Law since 2019.<\/p>\n

In addition to her robust consulting, investigation and litigation practice, Kadey was a professor at the University of Windsor Faculty of Law, teaching the Lawyer as Conflict Resolver, the Professional Identity and Legal Skills (PILS) and the Business of Law courses.\u00a0 She has been Guest Faculty with the Education and Development Bureau of the OPP, The Ontario Police College and the Toronto Police Services.\u00a0 Early in her career, she was a professor with Brock University, having designed and taught the first Conflict Management in Policing university course in Canada with the Criminal Justice and Policing Bachelor of Arts program.<\/p>\n

Being of service defines and guides Kadey.\u00a0 She has been a Director of Holland Bloorview Kids Rehabilitation Hospital Foundation for several terms. She also served on the Board of the Medical Legal Society of Toronto, and is a founding board member of Laughter Heals, a Canadian Social Enterprise committed to raising funds and awareness for various causes. Since 2012, Kadey\u2019s primary fundraising focus is to raise funds and advocate in an effort to change the world for people with Duchenne Muscular Dystrophy, including her son Emery. She is honoured to serve on the Board of Defeat Duchenne Canada.<\/p>\n

As a lawyer, mother, mentor, educator and thought leader, Kadey feels privileged to engage with her community and industry.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Tushar Shakya<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tChief Operating Officer, Canadian Cardiovascular Society\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Tushar Shakya<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Chief Operating Officer, Canadian Cardiovascular Society<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Tushar Shakya is a senior nonprofit executive with a strong track record in strategic leadership, stakeholder engagement, and organizational growth across Canada’s healthcare and research sectors. With extensive experience at the Canadian Institutes of Health Research, Mitacs, and the Canadian Cardiovascular Society, he has played a pivotal role in advancing national health priorities through policy, funding programs, and partnerships. Tushar brings a systems-thinking mindset and a commitment to collaborative, mission-driven leadership, with a passion for improving outcomes for individuals and families affected by complex health conditions.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Doyle Steinke<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t Inventory Controller, Future Ag Inc.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tDoyle Steinke\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Doyle Steinke<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Inventory Controller, Future Ag Inc.<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Doyle Steinke and his wife, Jody, have had the privilege of raising two beautiful boys along with their two sisters. Duchenne muscular dystrophy has been part of their son\u2019s journey and has changed the way they all view life.<\/p>\n

They live on a small tranquil farm in central Alberta that is home to horses, cattle, rabbits, dogs, cats and us. Over several decades, Doyle has had the experience of a career in AgriBusiness that has kept life very busy \u2013 especially going back to school twice \u2013 first for an Agricultural Business Diploma and then an MBA. The Steinke family counts every day a blessing and try to live life to the fullest.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Bonnie Wooten<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tChildren’s Hospital – London Health Sciences Centre\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Bonnie Wooten<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Children's Hospital - London Health Sciences Centre<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Bonnie Wooten is a registered nurse, project consultant and shared decision-making implementation consultant\/decision coach at Children\u2019s Hospital – London Health Sciences Centre (LHSC). During her career, she has worked in various professional leadership capacities in both acute care and community settings, focusing on women\u2019s and family health. Bonnie obtained her undergraduate degree from Western University and her graduate degree from Queens University.<\/p>\n

Because of her background, she brings an understanding of policy development, consultation, and leadership needed to support internal and regional projects. As a Shared Decision-Making coach, she works with pediatricians and other health care professionals internally and provincially, facilitating processes and strategies to address the pros and cons, risks and benefits of family and patient choice. She brings knowledge of the health care system and its complexities, along with what is needed to impact outcomes positively.<\/p>\n

Throughout her career, she has developed strong interpersonal and business relationships that maintain effective working relationships. She is client and customer-focused and very much aligned with the goals and focus of Defeat Duchenne Canada. She has solid organizational leadership and decision-making skills that will immediately contribute to the organization.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div>

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Leandra Wells<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tFounder and CEO, BrightHive Innovation Group\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\tLeandra Wells\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
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Leandra Wells<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Founder and CEO, BrightHive Innovation Group<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Leandra Wells is a Healthcare Executive, General Manager, and Board Director with a PhD in Molecular Biology and more than 20 years of leadership experience across the pharmaceutical industry, including senior roles with GSK, Johnson & Johnson, and Galderma. Having worked in one of the world’s most highly regulated industries, she has led organizations through business growth, innovative therapy launches, large-scale digital and AI-enabled transformation, and the implementation of strong operational governance and risk management practices.<\/p>\n

Through close relationships with families affected by Duchenne muscular dystrophy, Leandra has witnessed both the challenges of the disease and the remarkable advances being made through research and new therapies. She joined the Defeat Duchenne Canada Board to help advance the organization’s mission and support continued progress for patients and families.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t<\/div><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Our Committee Members<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Duchenne Family Advisory Committee<\/div>\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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Lorrie Power (Chair)<\/p>

Kerri Denysiuk<\/p>

Nicole Mathison<\/p>

Kasha Mitton<\/p>

Darlene Morden<\/p>

Eric Morden<\/p>

Rachael Witzke<\/p><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>

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Research Funding Advisory Committee<\/div>\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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Tushar Shakya (Chair)<\/p>

Dr. Natasha Chang (Associate Professor, Department of Biochemistry, McGill University, Montreal, Quebec)<\/p>

Dr. Eric Hoffman (Associate Dean, School of Pharmacy and Pharmaceutical Sciences, Binghamton University \u2013 SUNY; Co-founder and CEO of ReveraGen Biopharma; Co-founder and VP of AGADA Biosciences; Co-founder and President of TRiNDS LLC)<\/p>

Dr. Lisa Hoffman (Associate Scientist, Lawson Health Research Institute, London, Ontario)<\/p>

Dr. Jean Mah (Pediatric Neuromuscular Specialist and Senior Scientist, Alberta Children’s Hospital, Calgary, Alberta)<\/p>

Dr. David L. Mack, PhD (Professor, Institute for Stem Cell and Regenerative Medicine, University of Washington)<\/p>

Dr. Toshifumi Yokota (Professor, Department of Medical Genetics, University of Alberta, Edmonton, Alberta)<\/p>

Dr. Amanda Yaworski (Neuromuscular Specialist at the Children\u2019s Hospital of Eastern Ontario, Ottawa, Ontario)<\/p><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>

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Executive Committee<\/div>\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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Brian Atkinson (Board Chair)<\/p>

Richard Beatty (Treasurer)<\/p>

Natalie Rumscheidt (Vice Chair)<\/p><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>

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Governance Committee<\/div>\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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Leandra Wells (Chair)<\/p>

Tom Cappelli<\/p>

Perry Esler<\/p>

Doyle Steinke<\/p>

Bonnie Wooten<\/p>

Nicola Worsfold (Executive Director)<\/p><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>

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Investment Committee<\/div>\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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Richard Beatty (Treasurer)<\/p>

Dale Cheeseman (Volunteer)<\/p>

Stephen Duench (Volunteer)<\/p>

Matthew Hunter (Volunteer)<\/p>

James Knowles (Volunteer)<\/p>

Mike Morden (Volunteer)<\/p>

Nicola Worsfold (Executive Director)<\/p>

Mike Sheffar (Volunteer)<\/p><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Want to learn more about our volunteer leadership positions?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Click the button below to submit a volunteer application form.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tApply Now<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Our Staff Our Board Members Our Committee Members Duchenne Family Advisory Committee Lorrie Power (Chair) Kerri Denysiuk Nicole Mathison Kasha Mitton Darlene Morden Eric Morden Rachael Witzke Research Funding Advisory Committee Tushar Shakya (Chair) Dr. Natasha Chang (Associate Professor, Department of Biochemistry, McGill University, Montreal, Quebec) Dr. Eric Hoffman (Associate Dean, School of Pharmacy and […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":19,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-1446","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/defeatduchenne.ca\/fr\/wp-json\/wp\/v2\/pages\/1446","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/defeatduchenne.ca\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/defeatduchenne.ca\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/defeatduchenne.ca\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/defeatduchenne.ca\/fr\/wp-json\/wp\/v2\/comments?post=1446"}],"version-history":[{"count":180,"href":"https:\/\/defeatduchenne.ca\/fr\/wp-json\/wp\/v2\/pages\/1446\/revisions"}],"predecessor-version":[{"id":20431,"href":"https:\/\/defeatduchenne.ca\/fr\/wp-json\/wp\/v2\/pages\/1446\/revisions\/20431"}],"up":[{"embeddable":true,"href":"https:\/\/defeatduchenne.ca\/fr\/wp-json\/wp\/v2\/pages\/19"}],"wp:attachment":[{"href":"https:\/\/defeatduchenne.ca\/fr\/wp-json\/wp\/v2\/media?parent=1446"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}