The following is shared on behalf of Italfarmaco:
Are you or your loved one living with Duchenne and have been treated with Givinostat for at least two years? Your voice matters.
Italfarmaco is seeking Canadian participation in a new research study titled DMD Voice: Qualitative Interviews with Patients and Caregivers. This study aims to better understand the day-to-day experiences of individuals receiving Givinostat and its impact on independence, quality of life, and what truly matters to the Duchenne community.
What’s involved?
- A single, voluntary interview completed from the comfort of your home
- Open to:
- Individuals with Duchenne (age 10+)
- Caregivers of individuals with Duchenne
- Participants must have been on Givinostat for at least two years
- Each participant will receive a $100 gift card as a thank-you for their time
Your insights can help inform clinical and regulatory decision-making and ensure patient and caregiver perspectives are at the forefront of future research and treatment development.
To learn more or participate, please contact:
[email protected]
904-541-9326
This study is sponsored by Italfarmaco, and participation is completely voluntary. It will not affect your ongoing treatment.