One in every 5,000 children worldwide are born with Duchenne muscular dystrophy.
The Canadian Neuromuscular Disease Registry (CNDR) estimates there are more than 800 boys and young men living with Duchenne in Canada, and it is the most common fatal form of muscular dystrophy.
To date, we have invested $16 million into promising Duchenne research. Boys and young men with Duchenne are living longer than ever before, but there is still more research to be done. Until Duchenne does not shorten lives, prevent young people from walking and compromise their quality of life, we will not give up our fight against Duchenne.
In addition to empowering researchers to test and validate new approaches to Duchenne, your donations help support our education and advocacy initiatives. The work Defeat Duchenne Canada does helps ensure boys and young men with Duchenne are receiving the care they need. We’re advocating for access to therapies and clinical trials while providing families with resources on how to navigate their journey.