Skip to content

Thank you for your interest in volunteering with Defeat Duchenne Canada. By visiting our website and submitting your application to volunteer with our organization, you are taking an important first step towards contributing your unique value to the lives of families across Canada. The more friendly faces and helping hands we have contributing to our mission, the more readily able we will be to achieve it. Together, we can change Duchenne muscular dystrophy into a disorder of the past.

Below is a list of the volunteer opportunities currently available:

Board of Directors

National Director – Board of Directors

The Defeat Duchenne Canada Board of Directors is seeking new members who are accomplished in their fields and will be passionate leaders for the organization, overseeing its strategic goals. In 2023, the Board will shape a new strategic plan building on the current organizational pillars; advocacy, research, education and philanthropy.

Individuals from across Canada who have experience in one or more of the following areas are encouraged to apply:

  • Duchenne clinical care
  • Lived experience (personal or family member with Duchenne muscular dystrophy)
  • Duchenne research
  • All areas of philanthropy (including but not exclusive to corporate sponsorship, grants, events, donor development, planned giving, and major gifts)
  • Finance, banking, private equity
  • Information technology
  • Human resources

Time Commitment: 1-3 hrs / Month

Picture of Walk 2021 participants

Walk to Defeat Duchenne Committee – Sponsorship Volunteer

Volunteer for our largest national signature event, happening virtually across Canada on May 28, 2023. We’re looking for sponsorship volunteers to help secure funds for the walk and increase the organization’s profile in the communities where you live and work. If you are well connected to local or national businesses that may be interested in partnering with a great cause, we will be overjoyed to facilitate your conversations with them to generate their participation in our mission.

Even if you don’t already have established connections, if you’re not afraid to go knocking on doors or cold call potential friends of our organization – this is the job for you!

Please note, sponsorship Volunteers are required to attend two virtual committee meetings each month between Oct-May. Don’t worry, we promise to ensure these meetings are high energy, goal oriented get togethers that get our volunteers excited about how we can come together to create important changes for our kids and families.

Time Commitment: 2-10 hrs / Month

Picture of Duchenne Ambassadors - Mitton Family with John Davidson

Defeat Duchenne Canada Ambassador

We cannot say enough about the power of conversation and the ways your willingness to talk about your journey positively influences others. Share your story about living with Duchenne muscular dystrophy to help raise awareness regarding this rare disease across the country.

We are always looking for people and families with a close connection to Duchenne to be featured in blog stories, media interviews and to act as spokespeople for Defeat Duchenne Canada. By showcasing the human element behind the disease, you have the potential to empower others to deeply connect with our cause.

Time Commitment: 2-5 hrs

Thank you for learning about the variety of ways to contribute to our mission.

Didn’t see a volunteer posting you are interested in but have some unique skills you’d like to share with the team? Send an email to [email protected] with more information on how you’d like to help. We warmly welcome any ideas you may and are always thrilled to connect with vibrant community members who share our passion for saving and improving the lives of Duchenne patients.