Your child has received a diagnosis of Duchenne muscular dystrophy - now what?
Likely, you are experiencing a wide range of emotions, including uncertainty about how to move forward. You are not alone. Defeat Duchenne Canada is here to support you every step of the way.
Through our website and by connecting with our organization, you’ll find important information about how to navigate your next steps and access the right supports for your child now, and in the future. No matter what you are currently feeling or facing, we are here to support for your journey with Duchenne muscular dystrophy.
Please don’t hesitate to contact us directly.
There is no cure for Duchenne, but thanks to the developments in research and care, boys and young men are living longer with a better quality of life. Learn about the phases of Duchenne and the role specialists can play as part of your care team.
Your medical information can improve the understanding of neuromuscular diseases, like Duchenne muscular dystrophy and accelerate the development of new therapies. Learn more about why you should join the Canadian Neuromuscular Disease Registry (CNDR).
Defeat Duchenne Canada unites families across the country to help you find support, connection and hope within the shared experience of living life with Duchenne muscular dystrophy. Read, listen and learn from others who know what you’re going through.
Our organization is dedicated to informing, uplifting and uniting the Duchenne community through education and support. Learn more about the programs, resources and services available so that you can achieve the best possible outcomes for you and your child.
Understanding research and clinical trials can be complex. Here we discuss the current landscape of Duchenne research, clinical trial basics, and how to navigate what trial(s) may be suitable for you or your child through our Clinical Trial Finder Tool.