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Your Care Team

The management of Duchenne muscular dystrophy requires a coordinated effort from a multidisciplinary care team with expertise in Duchenne. The goal of supporting your child’s best-possible quality of life requires careful planning and follow-up from many different medical disciplines.

The most important step in your Duchenne journey will be receiving an accurate diagnosis. Once you have a confirmed diagnosis, your primary care provider will be able to refer you to the appropriate specialists. Your new care team will be responsible for managing your child’s neuromuscular, physical, psychological and developmental needs. Even after these referrals are made, your primary care provider will remain part of your care team for non-Duchenne-related health concerns.

Below we explore the individuals who make up your Duchenne care team: