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Education & Support

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Education & Support

Our vision is a future without Duchenne muscular dystrophy. Until we are able to create that future, our mission is to inform, uplift and unite families who are dealing with this devastating disease.

We work with researchers, clinicians, advocates and families to ensure we are able to share the most up-to-date information about this disorder and the steps being taken to treat and, eventually, cure its debilitating symptoms. We understand there is a lot of information contained on our website and it’s easy to feel overwhelmed when coping with the reality of a life-limiting disorder. However, our entire Defeat Duchenne Canada team is here for you. We want to cultivate a safe space for learning, discussion and connection between Duchenne families. Please reach out with any questions you may have and we will do our very best to get you the answers and support you are searching for.

Learn more about the programs, resources and services offered by Defeat Duchenne Canada, so you can become better equipped to achieve the best-possible outcomes and quality of life for your child and yourself.

In this section, you will find detailed information on the programs, resources and services offered by Defeat Duchenne Canada.

Please don’t hesitate to be in touch should you have any questions or need further support.

Family Forums

Hosted in partnership with Canada’s leading neuromuscular centres, the Family Forum is a unique opportunity that connects you with other families, researchers, clinicians, and industry professionals for a weekend full of education, inspiration, and hope.

Webinars

Defeat Duchenne Canada is committed to delivering current, evidence-based information straight from the experts directly to you. Watch the latest webinars on our YouTube channel and tell us what you want to learn to shape our future programming.

Canadians Talk Duchenne

Living with a rare disease, like Duchenne, can often feel isolating. Join Nicola Worsfold from Defeat Duchenne Canada and Amy Cavalier from Duchenne Canadian Connection – both Duchenne moms – for our monthly virtual support group for parents and caregivers.

Helpful Resources

Defeat Duchenne Canada values collaboration. Ensure you’re equipped with what you need throughout your journey with Duchenne muscular dystrophy by taking a look at the resources and services from other Canadian and international organizations.