Defeat Duchenne Canada’s Family Forum is the country’s only national education program specifically designed for boys and young men living with Duchenne and Becker muscular dystrophy and their families.
Hosted in partnership with one of Canada’s leading neuromuscular centres, the Family Forum is a unique opportunity that connects you with other families, researchers, clinicians, and industry professionals during an annual weekend full of education, inspiration, and hope.
Halifax, NS
In 2026, we are hosting Defeat Duchenne Canada’s 10th Family Forum with a destination event in Halifax, Nova Scotia!
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation on October 3 & 4, and nationally via Pheedloop.
Stay tuned for registration.
Toronto, ON
Celebrating the 30th Anniversary of Defeat Duchenne Canada, the 2025 Family Forum was hosted in partnership with SickKids and Holland Bloorview Kids Rehabilitation Hospital on October 25 & 26 in Toronto, Ontario, and nationally via Pheedloop.
257 participants
54 families
Ottawa, ON
Hosted in September 2024, during Duchenne Awareness Month, in person and open nationally via Pheedloop
Delivered in partnership with the Children’s Hospital of Eastern Ontario (CHEO)
183 participants
64 families
Ottawa, ON
Fall 2023, in person and open nationally via Zoom + Whova
Presented by PTC Therapeutics and delivered in partnership with the Children’s Hospital of Eastern Ontario (CHEO)
198 participants
54 families
London, ON
Fall 2022, in person and open nationally via Zoom + Whova
Presented by PTC Therapeutics and delivered in partnership with The Section of Pediatric Neurology at Children’s Hospital – London Health Sciences Centre
150 participants
63 families
Toronto, ON
Fall 2021, open nationally via Zoom + Whova
Presented by PTC Therapeutics and in partnership with Holland Bloorview Kids Rehabilitation Hospital and the Hospital for Sick Children (SickKids)
163 participants
62 families
Vancouver, BC
Fall 2020, open nationally via Zoom + Whova
Presented by PTC Therapeutics and in partnership with BC Children’s Hospital
189 participants
52 families
Montréal, QC
Spring 2020, open nationally via Zoom
Presented by PTC Therapeutics and in partnership with La Force DMD
136 participants
88 families
Calgary, AB
Fall 2019, in person
Presented by PTC Therapeutics and in partnership with Alberta Children’s Hospital
75 participants
23 families
London, ON
Spring 2019, in person
Presented by PTC Therapeutics and in partnership with Children’s Hospital – London Health Sciences Centre
100 participants
30 families
Want to participate in the next Family Forum?
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"The fact that the technology brought us closer together and we did not have to spend resources, like time and money, to be able to hear all of the very important info regarding Duchenne in Canada was absolutely incredible."
Nataljia (mother of a boy with Duchenne)Burnaby, BC
“Thank you for putting this event on and for your support for our community. Time for a change!”
Kari (mother of a boy with Duchenne)Saskatoon, SK
“I am enlightened, supported, and inspired. Thank you!”
Jackie (mother of a boy with Duchenne)Raymond, AB
