Living with Duchenne muscular dystrophy goes beyond the physical.
There is an enormous emotional impact on not only the person living with Duchenne but the whole family and extended community.
Relationships with your inner circle of friends, family and community are there for you to lean on when needed. But having not lived your experience it may often be difficult to understand or have the same appreciation for what you are going through.
Connecting with other Duchenne families who know what you are dealing with can be a huge comfort. Defeat Duchenne Canada has united families from coast to coast to help you find support, connection, and inspiration in the stories from families who know what you’re going through.
Use the map to read and view Duchenne family stories from across Canada, or scroll through some of our family video stories below.