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Shortly after his fifth birthday, our son Jackson was diagnosed with Duchenne muscular dystrophy, the most common and fatal form of muscular dystrophy.

Jackson was a late walker, starting his first steps around 20 months old. Soon after that, we noticed that he had difficulty climbing stairs. Unfortunately, Jackson was first dismissed by doctors and then misdiagnosed. It was around that time that we met and enlisted the help of Jackson’s physiotherapist, Jennifer. After two years of working with Jackson and not noticing much improvement in strength or flexibility, Jennifer prompted us to seek answers. With her help, Jackson’s doctors were able to perform further tests, and he received a diagnosis of Duchenne.

As parents, the most brutal fact to accept is that there is no cure - nothing to stop the progression of this muscle-wasting disease. Our primary goal in participating and raising funds for the Walk to Defeat Duchenne is to fund research in prevention for other children, access to improved treatments for Jackson, and ultimately - a cure for all boys and young men.

Please help us raise funds for research. Donate today for our son Jackson and all those affected by Duchenne muscular dystrophy.