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McCullough Family



My husband and I were young first-time parents when our world was turned upside-down. Our baby boy, Cole, began to have serious health issues, and through a series of medical investigations, doctors discovered that he also had Duchenne muscular dystrophy.

The news was devastating, and we had a difficult time processing this information. We immediately began to research Duchenne and the people and places we could reach out to for support and encouragement.

We happened upon Defeat Duchenne Canada (then Jesse’s Journey) and knew that we had to get in touch. John Davidson personally contacted us by phone, and his first words to us were those of hope. John quickly became a beacon of light in our lives.

We knew we needed to be proactive and get involved, so we decided to participate in the 2006 annual Walk to Defeat Duchenne. At the time, only 1000 people were permitted to participate because of logistics and safety. Each person was encouraged to raise $1,000. We raised our money and flew from Saskatchewan to London, Ontario.

My husband walked for 6 hours in the cold and rain along the highway. Seeing him come across the finish line filled me with joy and optimism for the future.

Since then, we have participated in 18 annual walks and have increased our fundraising goal yearly. Our mission is a cure. We won’t stop walking until it is found.  Though Cole is no longer with us, we feel the resolve to fight in his memory and for all the other families that will receive this heart-wrenching diagnosis.