There are so many incredible things happening, across Canada, that are bringing us closer to a world without Duchenne muscular dystrophy. We are excited to share them with you and we hope you will feel encouraged about the progress that is being made. One of our top priorities is to inform our Duchenne families and connect them with people who are going – or have gone – through the same things they are dealing with. Take advantage of this fantastic opportunity to chat with and learn from our organization’s biggest advocates – its Duchenne families!
Upcoming Events
Ontario
September 19, 2026
1:00 PM
Support the 7th Annual Cullen & Caden’s Ride on September 19, 2026. All donations go towards creating a future without Duchenne muscular dystrophy.
National
September 30, 2026
Every September, Defeat Duchenne Canada unites families, supporters, and partners across the country for Duchenne Awareness Month. Anchored by World Duchenne Awareness Day on September 7, this year’s theme, “Access Changes Lives,” shines a light on access to community, treatments, and information all month long.
Nova Scotia
October 3, 2026
Join us in Halifax, Nova Scotia, or online from anywhere in Canada for the 2026 Family Forum on October 3 and 4, for a weekend of education, connection, inspiration.
National
October 27, 2026
7:00 PM
Join Defeat Duchenne Canada for a community webinar with Kye Pharmaceuticals on October 27 at 7:00 p.m. ET to stay up to date on the current findings with vamorolone (AGAMREE).
National
November 18, 2026
7:00 PM
Join us for a 60-minute virtual session bringing together some of the leading voices in gene therapy for Duchenne.
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Create your own fundraising page to make it easy for people to donate directly to your activity, without all the hassle of personally collecting cash from each participant. Once you create your safe and secure donation page for your event, you will get access to our email templates, social media promotion, and tips on how to ask for donations. These branded fundraising tools help increase reach and awareness, so you can make an even bigger impact with your event.