Canadians Talk Duchenne – January
Living with Duchenne muscular dystrophy can often feel isolating. That’s why Defeat Duchenne Canada has partnered with Duchenne Canadian Connection to create a sense of community by bringing families together from across the country to learn from one another and discuss current events that are relevant to our Duchenne community. So, grab your favourite beverage and join our monthly virtual social for parents and caregivers.
Each social will be live via Zoom at 7:00 PM ET. Canadians Talk Duchenne is a free event and is open on a first-come, first-served basis to the first 25 registrants. Once registered, you will receive an email with the Zoom details.
About Duchenne Canadian Connection
Amy Cavalier started the Facebook group Duchenne Canadian Connection after her two sons – Kaleb and Liam, were diagnosed with Duchenne. Amy co-hosts Canadians Talk Duchenne with Defeat Duchenne Canada, sharing her personal perspective with other families living with this rare disease.
January Feature Family
Torrance Ho is a disabled artist and TikToker (90k+ followers) with Duchenne muscular dystrophy. He draws cute character art with an adaptive switch button that controls the iPad.
His brother, Terrence Ho, is the Head of Global Sales Education and Operations at Braze Mobility, a company that developed the world’s first blind spot sensors for wheelchairs. He’s also co-authored the book “Bold Spirit Caring for the Dying and trained as an End of Life Care Doula.”
Terrence’s motivation comes from his brother, who has been his care advocate for over 20 years and primary caregiver for the last four years. Terrence’s personal experiences caring for his brother and losing their mother to stage four lung cancer two and a half years ago have given him a unique perspective on the needs of patients and caregivers. These experiences have made him a strong advocate for accessibility, end-of-life care, and mental well-being.