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Canadians Talk Duchenne – April

Starts April 24, 2024
7:00 PM
Event Type: Virtual
Event Category: Education & Support
Audience Type: Parent or Caregivers

Living with Duchenne muscular dystrophy can often feel isolating. That’s why Defeat Duchenne Canada has partnered with Duchenne Canadian Connection to create a sense of community by bringing families together from across the country to learn from one another and discuss current events that are relevant to our Duchenne community.

DMD in Adulthood: Navigating the Transition for Caregivers

Join us for an informative session with returning guest speakers Terrence and Torrance Ho. Terrence shares his personal journey in the caregiver role for his adult brother, Torrance, who is living with Duchenne muscular dystrophy. As Torrance approached legal adulthood, Terrence ensured his brother received the necessary care and access to essential medical information. In this session, you are invited to chat with Terrence about the legal steps he needed to take to become Torrance’s caretaker, including strategies for maintaining access to medical resources and support services.

Whether you’re facing a similar transition or simply seeking guidance for the future, this event offers practical advice and firsthand experiences to help you navigate this critical stage with confidence and clarity. Don’t miss this opportunity to gain valuable insights and connect with others in the Duchenne community as we explore the path forward together.

Each social will be live via Zoom at 7:00 PM ET. Canadians Talk Duchenne is a free event and is open on a first-come, first-served basis to the first 25 registrants. Once registered, you will receive an email with the Zoom details.

About Duchenne Canadian Connection

Amy Cavalier started the Facebook group Duchenne Canadian Connection after her two sons –  Kaleb and Liam, were diagnosed with Duchenne. Amy co-hosts Canadians Talk Duchenne with Defeat Duchenne Canada, sharing her personal perspective with other families living with this rare disease.