Canadians Talk Duchenne – September
Living with Duchenne muscular dystrophy can often feel isolating. That’s why Defeat Duchenne Canada has partnered with Duchenne Canadian Connection to create a sense of community by bringing families together from across the country to learn from one another and discuss current events that are relevant to our Duchenne community. So, grab your favourite beverage and join our monthly virtual social for parents and caregivers.
Each social will be live via Zoom at 7:00 PM ET. Canadians Talk Duchenne is a free event and is open on a first-come, first-served basis to the first 25 registrants. Once registered, you will receive an email with the Zoom details.
New in 2023: This year, we will have ‘feature families’ who will share their journey living with Duchenne, the struggles they’ve overcome and provide an opportunity for informal Q&A.
Would you be interested in sharing your story? Email [email protected] for more information.
About Duchenne Canadian Connection
Amy Cavalier started the Facebook group Duchenne Canadian Connection after her two sons – Kaleb and Liam, were diagnosed with Duchenne. Amy co-hosts Canadians Talk Duchenne with Defeat Duchenne Canada, sharing her personal perspective with other families living with this rare disease.