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Duchenne Awareness Month 2022

Duchenne Awareness Month 2022

Starts September 1, 2022
12:00 AM
Ends September 30, 2022
11:59 PM
Event Type: Virtual
Event Category: Advocacy
Audience Type: Everyone

September is recognized as Duchenne Awareness Month in Canada, and September 7th is World Duchenne Awareness Day. This year’s theme is ‘Women & Duchenne,’ and we’re highlighting Canadian stories from all aspects connected with Duchenne and the female world.

As Duchenne muscular dystrophy is an X-chromosome-linked disease, the spotlight is – almost always – on boys and young men. However, it is estimated that around 1 in 50 million girls have Duchenne. It may be rare, but women are living with Duchenne.

Join Defeat Duchenne Canada and patient advocacy organizations worldwide to raise awareness of the most common fatal form of muscular dystrophy.

Take Action:

Share on Socials

Defeat Duchenne Canada, and the World Duchenne Organization will share resources and stories throughout the month. Be sure to:

  1. Follow and like @DefeatDuchenne on Facebook, Twitter, Instagram and LinkedIn | @WorldDuchenne on Facebook, Twitter, Instagram, and LinkedIn, share our stories, tagging #WDAD2022 
  2. Update your profile picture with the official WDAD balloon
  3. Share the Press Pack with your families, care centers, and local press
  4. Download the official materials from the World Duchenne Organization

Shine a Light

Since 2014, the Canadian Duchenne community has helped raise awareness of World Duchenne Day by organizing local monuments and landmarks to light up in red. This year, Defeat Duchenne Canada has planned for the following buildings across eight provinces to light up from coast to coast on/around September 7:

  1. BC Place – Vancouver, BC
  2. Canada Place | Sails of Light – Vancouver, BC
  3. Fraser River Walking Bridge – Quesnel, BC
  4. Science World – Vancouver, BC
  5. Olympic Cauldron and Convention Centre – Vancouver, BC
  6. Confederation Garden Park Fountain – Victoria, BC
  7. The Bastion – Nanaimo, BC
  8. Maple Ridge City Hall – Maple Ridge, BC
  9. Port Coquitlam City Hall – Port Coquitlam, BC
  10. Vancouver Convention Centre – Vancouver, BC
  11. High-Level Bridge – Edmonton, AB
  12. Calgary Tower – Calgary, AB
  13. Reconciliation Bridge – Calgary, AB
  14. Medicine Hat Public Library – Medicine Hat, AB
  15. Red Deer City Hall – Red Deer, AB
  16. Winnipeg Sign – Winnipeg, MB
  17. Saskatoon City Hall – Saskatoon, SK
  18. CN Tower – Toronto, ON
  19. 3D Toronto Sign – Toronto, ON
  20. Enercare Centre – Toronto, ON
  21. Niagara Falls – Niagara Falls, ON
  22. Mississauga Clock Tower – Mississauga, ON
  23. Brant Street Pier – Burlington, ON
  24. Riverwalk Commons & Fred A. Lundy Bridge – Newmarket, ON
  25. London City Hall – London, ON
  26. London Convention Centre (RBC Place) – London, ON
  27. Sifton Properties – London, ON
  28. Avon Theatre – Stratford, ON
  29. Welland Bridge 13 – Welland, ON
  30. Town Hall Clock Tower – Collingwood, ON
  31. The Grand River Pedestrian Bridge – Cambridge, ON
  32. Cambridge Civic Square Sign – Cambridge, ON
  33. Hespeler Falls – Cambridge, ON
  34. Montreal’s Olympic Stadium – Montreal, QC
  35. New Brunswick Legislative Building – Fredericton, NB
  36. Port of Sydney, The Big Fiddle – Port of Sydney, NS
  37. Charlotte Town City Hall – Charlottetown, PEI

Click the button to the left to access our template and contact your local landmarks. Once booked, let us know the location and date, and we’ll add it to the list. Be sure to take a picture and share it with us by posting it on your social media using #WDAD2022 and tagging @defeatduchenne on Facebook, Twitter, Instagram and LinkedIn.

Attend & Learn

On September 7, the World Duchenne Organization will launch a free online event focused on Women and Duchenne via YouTube at 15:00 CEST (9:00 a.m. ET).

First, they will give the podium to women to address their needs and challenges. Secondly, they are providing information about optimal clinical, psychological and social support for carriers. Third, they will put the spotlight on the female caregivers. Lastly, they are highlighting the engagement of strong female scientists, clinicians and advocacy leaders.