Gene Therapy Education Night

Scroll to the bottom to register for this event

This education night was shaped by responses from our community survey and built around the questions families told us they most want answered.

Join us for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices and clinical expertise, they’ll help translate complex science into clear, practical information you can use. 

What to expect:

• Plain-Language Insights: What is gene therapy and how does it work?
• Patient & Family Voices: Stories of lived experience
• The Journey: A step-by-step overview of the treatment journey
• Expectations & Effectiveness: Short-term and long-term outlooks for both pediatric and adult patients
• Clinical Trials: Current landscapes and eligibility criteria
• Debunking Myths: Addressing misconceptions surrounding cures, access, and eligibility

Don’t miss out on this chance to get your questions answered in real time!

The discussion and collaboration from this evening will directly inform the development of our upcoming Gene Therapy Toolkit coming to you later in 2027. This will be a plain-language resource to help families and healthcare providers understand gene therapy and navigate the treatment journey.

So, come with your questions, and help us shape what comes next. Your participation helps build resources for the entire Canadian Duchenne community.

Free to attend. Open to all.

Scroll to the bottom to register for this event