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Webinar: Your Voice In Research

Starts October 19, 2021
4:00 PM
5:00 PM
Event Type: Virtual
Event Category: Research
Audience Type: Everyone

Jesse’s Journey is proud to partner with Muscular Dystrophy Canada (MDC) and The Neuromuscular Disease Network for Canada (NMD4C) to host ‘Your Voice in Research: Participating in Data Registries.’ All Canadians living with a neuromuscular disease, like Duchenne muscular dystrophy, and their family members are encouraged to attend this free webinar.

Webinar: Your Voice in Research: Participating in Data Registries

When: Tuesday, October 19, 2021, from 4-5 p.m. EDT


  • Dr. Craig Campbell (Head of the Division of Pediatric Neurology and Acting Chair of the Department of Pediatrics, Professor of Pediatrics, Epidemiology and Clinical Neurological Sciences, Western University)
  • Dr. Victoria Hodgkinson (National Program Manager at the Canadian Neuromuscular Disease Registry)

What You Will Learn

  1. Understand how registries work!
  2. Understand why registries are an important part of your healthcare community.
  3. Learn how to partner with the Canadian Neuromuscular Disease Registry (CNDR) and make a difference in advancing neuromuscular research.
  4. Understand how to get involved in upcoming research!