Since 2014, the Canadian Duchenne community has helped raise awareness of World Duchenne Day by organizing local monuments and landmarks to light up in red.

Click the button to the left to access our template and contact your local landmarks. Once booked, email us the location and date ([email protected]), and we’ll add it to the list. Be sure to take a picture and share it with us by posting it on your social media using #WDAD2024 and tagging @defeatduchenne on Facebook, Twitter, Instagram and LinkedIn.

Confirmed Locations Across Canada on September 7, 2024 (unless otherwise stated):

British Columbia – Gather at 8 p.m. PDT

• Nanaimo: The Bastion Sept 8
• Port Coquitlam: City Hall
• Vancouver: Sails of Light, Canada Place
• Vancouver: Science World Sept 5
• Victoria: Victoria Legislature
• Whistler: Fitzsimmons Creek Bridge

Alberta – Gather at 8:30 p.m. MDT

• Calgary: Arts Common
• Red Deer: City Hall

Manitoba – Gather at 8:30 p.m. CDT

• Winnipeg: Esplanade Riel Footbridge
• Winnipeg: WINNIPEG Sign

Ontario – Gather at 8 p.m. EDT

• Collingwood: Town Hall Clock Tower Sept 9
• Fort Erie: Peace Bridge  Sept 6
• London: City Hall Sept 8
• Mississauga: Clock Tower
• Newmarket: Riverwalk Commons Sept 6
• Newmarket: Fred A. Lundy Bridge Sept 6
• Niagara Falls: Illumination Board
• Ottawa: Shaw Centre
• Toronto: CN Tower
• Toronto: 3D Toronto Sign
• Welland: Bridge 13

Quebec – Gather at 8 p.m. EDT

• Montreal: Olympic Stadium

Nova Scotia – Gather at 8:30 p.m. ADT

• Halifax: City Hall
• Halifax: Keith’s Brewery Market

Prince Edward Island – Gather at 8:30 p.m. ADT

• Charlottetown: City Hall

Newfoundland – Gather at 8 p.m. NDT

• St. John’s: The Rooms
• St. John’s: Signal Hill Confederation Building

This World Duchenne Awareness Day (WDAD) 2024, we are raising our voices and advocating loudly for individuals living with Duchenne muscular dystrophy (DMD) to push for immediate access to treatment and care in Canada. We believe that personal stories have the power to inspire, educate, and create positive change. That’s why we invite you to join us in raising your voice and telling us what Time is Muscle means for you.

By sharing your experiences and insights, you can help shed light on the unique challenges faced by individuals with DMD and offer valuable perspectives on how what time means for you and your family and how action today can change your tomorrow. We encourage you to use the hashtag #TimeisMuscle when spreading awareness on social media, as it will allow your story to reach a wider audience and connect with others who may be going through similar experiences.

Here are a few example sentences to get your started and feeling inspired as you raise your voice for Duchenne:

1. Did you know that there is currently no access to treatment for Duchenne in Canada? Every day counts for my son living with Duchenne muscular dystrophy. We need immediate access to treatments to slow the progression TODAY. #TimeisMuscle
2. As a family, we know the urgency of timely care for Duchenne. Please help us share our story and let’s make our voices heard! We need access to treatments today! #TimeisMuscle
3. Our fight against Duchenne is a race against time. Let’s unite and push for the care and treatment our community needs. #TimeisMuscle

By raising your voice, you have the potential to inspire and educate others, creating a ripple effect of positive change. We’d love to hear from you. Publish your posts on social media with the hashtag #TimeisMuscle and tagging @DefeatDuchenne.

Plus, don’t forget to use the official World Duchenne Awareness Day materials in your posts. Click the button to the left to access download the campaign materials:

• Press Pack: The 2024 press pack contains information about this year’s theme, activities, and key facts about Duchenne and Becker.
• Logos: Download the file that contains all logos and images for World Duchenne Awareness Day.
• Fact Sheets: There are three fact sheets developed with information about Duchenne and females with dystrophinopathies.

The World Duchenne Organization is launching an official documentary directed by Nicoletta Madia and produced by Arim Communication. This documentary brings to light the powerful stories of three individuals from Italy, Spain, and Brazil, each living with Duchenne muscular dystrophy. Through their experiences, the documentary highlights the themes of care, independence, support, inclusion, and education, showcasing the strength and resilience of those living with DMD.