CORD: Rare Disease Day 2023

Canadian Organization for Rare Disorders (CORD)

New Rare Disease Day survey shows three million Canadians with a rare disease suffer years-long delay to diagnosis and access to specialists, leading to irreparable harm, disability, and early death.

Continue reading

Pfizer: Economic Burden Study

Pfizer Logo

Pfizer has created a survey aimed at better understanding the economic burden of caregivers for a child/children diagnosed with Duchenne muscular dystrophy. Please complete the survey by Monday, August 8, 2022.

Continue reading

CORD: Open Letter to Premiers

Canadian Organizations for Rare Disorders

The Canadian Organization for Rare Disorders (CORD) has created an open letter asking the government to commit dedicated funds to support the establishment of networks of Centres of Excellence across Canada.

Continue reading