Defeat Duchenne Canada: National Rare Disease Drug Strategy Update

The Government of Canada has announced measures in support of the first-ever National Strategy for Drugs for Rare Diseases, with an investment of up to $1.5 billion over three years.

New Rare Disease Day survey shows three million Canadians with a rare disease suffer years-long delay to diagnosis and access to specialists, leading to irreparable harm, disability, and early death.

The World Duchenne Organization has launched the Accredited Duchenne Centers Program. This global program is part of the unique development of a
worldwide accreditation for Duchenne Centers.

September 7 is World Duchenne Awareness Day. Each year, an annual campaign aims to increase awareness of Duchenne and Becker muscular dystrophy. Join us as we raise awareness and inspire action.

Quebec has established the first provincial policy for rare diseases, aimed at optimizing the accessibility of quality health care and services that are safe, fair, inclusive and adapted to the specific needs of patients with rare diseases and their families.