Longtime Defeat Duchenne Canada volunteer, Harry Norris, completed his goal of walking across Canada – without leaving his hometown of Mitchell, Ontario.
Continue readingLongtime Volunteer Walks Across Canada
Defeat Duchenne Canada and PPPMD Award Clinical Fellowship in Duchenne Endocrinology and Bone Fragility
Defeat Duchenne Canada and Parent Project Muscular Dystrophy (PPMD) have awarded $172,000 (CAD) to a clinical fellowship in Duchenne endocrinology and bone fragility.
Continue readingWorld Duchenne Awareness Day: September 7, 2021
Defeat Duchenne Canada joins forces with organizations from around the world to raise awareness for Duchenne and Becker Muscular Dystrophy (DMD/BMD) on World Duchenne Awareness Day.
Continue readingDefeat Duchenne Canada: Grants $1.7 million to Duchenne muscular dystrophy research
Defeat Duchenne Canada is proud to announce that it will grant $1.7M toward four promising research projects in 2021- the largest annual amount in our 26-year history.
Continue readingOpen Letter to Minister: Reduce the Timing Between Doses for Patients with Neuromuscular Diseases
Defeat Duchenne Canada is asking the Duchenne community to advocate for reduced timing between COVID-19 vaccines for patients with neuromuscular diseases.
Continue readingHealth Canada: Recommendations for National Rare Disease Strategy
Health Canada has opened up a consultation for organizations like Defeat Duchenne Canada, to provide recommendations on a discussion paper outlining ways to address access to high-cost rare disease drugs in Canada.
Continue readingMuscular Dystrophy Association (MDA): 2021 Conference Update
Defeat Duchenne Canada is pleased to share three treatment updates for Duchenne as presented at the recent Muscular Dystrophy Association (MDA) Virtual Clinical & Scientific Conference.
Continue readingDefeat Duchenne Canada Funded Research: ‘Model’ future of precision medicine for rare inherited disorders
Defeat Duchenne Canada funded research provides a ‘model’ for future precision medicine for rare inherited disorders, like Duchenne muscular dystrophy.
Continue readingCOVID-19 and Duchenne
Defeat Duchenne Canada is here to support the Duchenne community throughout the pandemic and will continue to provide accurate and timely information on how to keep you and your family safe.
Continue readingOpen Access: Recent studies on Duchenne muscular dystrophy
Read the open-access article published in Nature by Defeat Duchenne Canada funded researcher, Dr. Dongsheng Duan, as he discusses the knowledge gained from recent studies in Duchenne.
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