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Putnam Associates: Duchenne Caregiver Study

January 23, 2024

Putnam Associates, a global healthcare research firm, is conducting a research study to better understand the Duchenne muscular dystrophy caregiver experience.

They are looking to speak with ~5 Canadian primary caregivers of loved ones with Duchenne who are currently in the pre-symptomatic or early/late ambulatory stage. Compensation will be provided ($150 CAD) if screening criteria is met and you are selected to participate in the research. The research will be conducted through a 60-minute blinded discussion (through Zoom) on various topics, including (but not limited to):

  • Interactions with the patient’s DMD care team
  • Treatment decision making
  • DMD community involvement
  • Interest in newer therapies that are in development for DMD

 They are looking to complete all discussions by February 16, 2024. Please complete their screener to determine eligibility: