Putnam Associates, a global healthcare research firm, is conducting a research study to better understand the Duchenne muscular dystrophy caregiver experience.
They are looking to speak with ~5 Canadian primary caregivers of loved ones with Duchenne who are currently in the pre-symptomatic or early/late ambulatory stage. Compensation will be provided ($150 CAD) if screening criteria is met and you are selected to participate in the research. The research will be conducted through a 60-minute blinded discussion (through Zoom) on various topics, including (but not limited to):
- Interactions with the patient’s DMD care team
- Treatment decision making
- DMD community involvement
- Interest in newer therapies that are in development for DMD
They are looking to complete all discussions by February 16, 2024. Please complete their screener to determine eligibility: