I am very happy to share with you today the news that Rick Moss, our Director of Advocacy and Partnerships, has joined the Board of Directors of the Canadian Organization for Rare Disorders (CORD).

Over the past two years Rick has been working diligently on behalf of Defeat Duchenne Canada in the area of advocacy with the goal of bringing treatments for Duchenne muscular dystrophy on stream as quickly as possible. Rick will continue in that role as well as serving on the Board of Directors at CORD.

Durhane Wong-Rieger, the President and CEO at the Canadian Organization for Rare Disorders, has expressed thanks that Rick has chosen to contribute his time, talent and expertise as that organization takes on some of its most important challenges and opportunities. I know Rick has clearly defined objectives in mind that he is anxious to see developed by CORD.

This announcement is very encouraging news for all Duchenne families and I am certain that Rick’s dedication and commitment to Defeat Duchenne Canada will be reflected in the work he undertakes on behalf of all those boys and parents he has come to know over the past 15 years.

John Davidson
Chairman of the Board of Directors, Defeat Duchenne Canada