Defeat Duchenne Canada is sharing an important announcement from the World Duchenne Organization and Treat-NMD with our Canadian Duchenne community:
The World Duchenne Organization is expressing its concerns regarding an organization that claims to be raising money for a ‘lifesaving’ stem cell treatment. We are supporting and sharing the statement from Treat-NMD, the organization that represents doctors and scientists working in neuromuscular diseases.
Please click on the button below for the full statement.
- Currently, there are no approved stem cell therapies for Duchenne MD
- You NEVER pay for a clinical trial
- If a ‘trial’ is not on clinicaltrials.gov, it is not a legitimate trial
If you have any questions, please reach out to Defeat Duchenne Canada at [email protected].